yesterday i wrote my last update to the bosses. today already i am writing them a new email. it reads as follows. it's the follow up to the dialysis saga. i leave july 9th.. we'll see how many more there will be.
Last night Doogs told me Vaca Diez decided dialysis patient needs dialysis up until she leaves. Plan last night was dialysis sessions this week (however many needed) and from there we buy her a plane ticket. If I understand correctly she had hongos (fungus) in her catheter and the dialysis last week was not effective.
I just talked to patient (she answered the phone) and patient's daughter. Liliana told me her mom has changed her mind about the Argentina plan. She doesn't want to go. Even if this means her death, she wishes to die at home with her family around her.
Please let me know if there is anything else we can do for her, to meet her wishes and help her be comfortable if that is possible. I'll catch Doogs in the morning and follow up with the fam depending on what he says.
ps. I plan to go visit the patient in her home next Sunday.
alright i've learned to do good things. but all along i've learned the foundation. the foundation never admits defeat. the foundation doesnt believe in boundaries or limits. the foundation thinks that helicopters are the answer to road blocks and argentina is the answer to a failing kidney we cant transplant and a failing body we cant afford to dialize. since i've been here the foundation has never once engaged a palliative care conversation. i just learned this word so i'm probably pretty valiant to be the one starting it. however, i hear what the patient is saying. for the very least, that's why i'm here.
1.5 months ago this is the patient that broke me. i wanted to help the patient survive. now i'd be equally honored to help her meet her wishes.